Neurol. praxi. 2010;11(1):32-35

Palliative care in paediatric neurology

MUDr.Josef Kraus, CSc.
Klinika dětské neurologie, 2. LF UK a FN Motol, Praha

The goal of palliative care is to provide relief or alleviate symptoms and support the best possible quality of life regardless of the disease

status. In paediatric care, it includes the following components: biological, psychosocial, spiritual, treatment plan and practical solutions.

The most important part is a mutual communication about the disease as well as options. In addition to the psychosocial aspect, an

individual approach is of major importance. The term palliative care has different meanings for the child, parents or carers. Sometimes

it means management of pain and symptoms; at other times it is a spiritual aspect, for instance. What is shared, however, is the need to

keep some hope even in seemingly hopeless situations. Also related to palliative care are ethical and economic issues.

Keywords: palliative care, nervous symptoms, treatment

Published: March 1, 2010  Show citation

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Kraus J. Palliative care in paediatric neurology. Neurol. praxi. 2010;11(1):32-35.
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References

  1. Association for Children with Life-threatening or Terminal conditions and their Families. A guide to development of children's palliative care services. Bristol (London): Royal College of Paediatrics and Child Health; 1997.
  2. ElBasiouny SM, Moroz D, Bakr MM, Mushahwar VK. Management of spasticity after spinal cord injury: Current techniques and future directions. Neurorehab Neural Repair 2009; in press. Go to original source... Go to PubMed...
  3. Ens CD, Chochinov HM, Bérard JL, Harlos MS, Stenekes SJ, Wowchuk SM. Pediatric palliative care online: the views of health care professionals. J Palliat Care. 2008; 24(1): 41-48. Go to original source... Go to PubMed...
  4. Himelstein BP, Hilden JM, Bold AM, Weissman D. Pediatric palliative care. N Engl J Med 2004; 350(17): 1752-1762. Go to original source... Go to PubMed...
  5. Korones DN. Pediatric palliative care. Pediatr Rev. 2007; 28(8): e46-56. Go to original source... Go to PubMed...
  6. Mongeau S, Champagne M, Liben S. Participatory research in pediatric palliative care: benefits and challenges. J Palliat Care. 2007; 23(1): 5-13. Go to original source... Go to PubMed...
  7. Oxford Textbook of Palliative Care for Children. New York. Oxford Univ. Press 2006.
  8. Santucci G, Mack JW. Common gastrointestinal symptoms in pediatric palliative care: nausea, vomiting, constipation, anorexia, cachexia. Pediatr Clin North Am. 2007; 54(5): 673-689. Go to original source... Go to PubMed...
  9. Ullrich CK, Mayer OH. Assessment and management of fatigue and dyspnea in pediatric palliative care. Pediatr Clin North Am. 2007; 54(5): 735-756. Go to original source... Go to PubMed...
  10. Weidner NJ. Pediatric palliative care. Curr Oncol Rep. 2007; 9(6): 437-439. Go to original source... Go to PubMed...
  11. Wusthoff CJ, Shellhaas RA, Licht DJ. Management of common neurologic symptoms in pediatric palliative care: seizures, agitation, and spasticity. Pediatr Clin North Am. 2007; 54(5): 709-733. Go to original source... Go to PubMed...




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